Dixon, Matt. “Is It Time to Ditch the Post-Call Survey?” ICMI, August 7, 2019. https://www.icmi.com/resources/2019/is-it-time-to-ditch-the-post-call-survey.

No matter the topic, surveys allow for people to express their opinions so that they impact results of a survey and/or questionnaire.

 

 

Despite their expected brevity, surveys are an easy way to get access to so many individuals’ thoughts and opinions, especially if they do not wish to vocalize them publicly.  They are tools used to gauge public opinion regarding certain topics. The process of using surveys is easy and accessible to many due to the different forms they take.  Digital?  Written?  Over the phone? There are so many types of surveys with numerous ways to conduct them in order to receive the most accurate and useful data as possible in the most efficient ways.

Nowadays, surveys are all around us whether we realize it or not, whether they be disguised in an email asking us about a recent visit to a store or through the credit card machines while we are paying for our merchandise on the lines of department stores.  Engines such as Survey Monkey and Google Forms provide easy access to partaking in a survey about any given topic.  Traditional research methods tend to be longer and more tedious while surveys typically produce immediate results that are later used for further analysis to determine a general consensus. To construct a successful and effective survey, one should be aware of the power of psychology.  The diction is a key factor in expressing the meaning and intent of the question so that the same question is understood by all participants to have the same meaning.^1  If people are asked questions in a biased manner, their answers will most likely be reflective of that.  For this reason, it is important to avoid prejudice as well as ask a variety of questions while also being mindful of being simple.  Asking complex questions with longer phrases may mislead participants while answering.

Surveys take many different forms and allow individuals different ways to express their opinions and feelings.

“3 Essential Ingredients of Survey and Feedback Campaigns.” Iterable, November 26, 2019. https://iterable.com/blog/3-

essential-ingredients-survey-feedback-campaigns/.

(more…)

Surveys and questionnaires have become a useful tool in marketing and research. Surveys can be used for a variety of reasons and the structure of the survey can direct it in a particular direction. The anonymousness that surveys can allow brings a larger pool of participants to the survey group. Allowing the answers to remain anonymous allows participants to answer questions more truthfully, whereas if their name was attached to an answer, they may hesitate and choose a more socially correct answer in the fear of judgement or disapproval. Although anonymous, surveys can still ask questions in order to define a particular age group, race, or subject pool which can help infer the data of the results. The ability to be anonymous in a survey separates surveys from other research methods such as interviews because it is easier to obtain data from a larger, more honest pool of participants.

Anonymity of surveys allow all individuals to participate truthfully without judgement.

Surveys allow participants to tell the truth on their opinions and views of the world. While designing a survey, I may have my own personal distinct view on a topic and I may construct the questions in a way that lead participants to answer how I want them to by using certain wording techniques and placing the questions in a certain order. If conducting a survey, I would not expect any of my participants to share the same world views with me although I may be able to word the questions in a way to persuade the participants to answer the same way I did; surveys can be manipulative.

Being in a society such as we are now, every can have their own, distinct views on the world and problems occurring within it. Race, ethnicity, and social class have a clear impact on an individual’s world view. New Jersey and states bordering us, such as New York, problems with police brutality have been rising in the communities. Although unjust for everyone, black or African American individuals are more likely to be concerned on this issue than other races. An article from nj.com explains how the black community feels that they are more likely to be punched by a cop. This issue would be of a greater significance to certain races than other and answers may vary about the severity of the situation and the importance of it. Black individuals see the world differently than let’s say non-Hispanic white individuals. Ethnicity has also separated society into groups based on their culture such as their traits, language, religion, or diet. With this separation comes different world views as each group has different values. Social class is another distinction that can alter the way that individuals view world topics. Unemployment in the US and in the world are a concern to all, but primarily a concern to the poor and lower social classes. The rich, wealthy class can rely on their trust funds and money to support them, while the homeless get fired from their job for no specific reason and can no longer afford items such as food. If asked, lower social classes would be more concerned about unemployment rates because it personally affects them. Race, ethnicity, and social class are three socioeconomic statuses that can affect an individual’s world view.

Being that each individual can have their own opinions on which worldly topic is most important, or least important, surveys would be able to reflect that. Surveys speak for the people and show how they feel. You can provide ten people that a very similar with the same ten questions and still come out with ten different results because every individual has their own values and opinion. Surveys are a very useful method to conduct research and analyze data.

The process of using surveys are fraught with possible traps and mistakes. The type of questions asked the region the survey is deployed in, the type of people who are asked, and even something as simple as the order of the questions can influence the data gathered. One example is a survey in 2003 asked people “whether they would ‘favor or oppose taking military action in Iraq to end Saddam Hussein’s rule.’ However, when asked whether they would ‘favor or oppose taking military action in Iraq to end Saddam Hussein’s rule even if it meant that U.S. forces might suffer thousands of casualties,’ responses were dramatically different.”1 This easily shows how surveys can be misleading due to psychology. Surveys are still a popular form of data collection though, due to the fact that if implemented correctly, this type of research can give a great amount of insight. Even the best survey can never be one-hundred percent accurate, especially for the entire population, but it is different than other forms of research. Surveys can show the beliefs and perspectives of as many people as possible to give a greater understanding of society. In studying history, for example, one can see how perspectives and beliefs of people changed over time. When Americans were asked what the most important issue facing the country was, the answers depended upon what was happening.

America was focused on neutrality until the bombing of Pearl Habor, December 7, 1941

Keeping out of the war, for example, was one of the most important issues during 1941, but this worry disappears in 1997. This primary source is an excellent way for Historians to understand past perspectives. War was an issue in 1941 due to world war II and not in 1997 due to a lack of foreign wars the US was involved in since it was before 9/11. As for responses, especially with open-ended questions, one can expect similar types of answers, but even people who believe in the same thing can answer a question drastically differently. One can never assume that people taking the same survey will answer the same or different. The complex interactions of environment, social class, race, gender, and sexual orientation to name a few creates a unique situation for each person. Even if you are in the same social category as another person your beliefs can be different. For example, the Equal Rights Amendment failed to pass due to divisions within one category. Despite the ERA giving equal legal rights for all, many women believed that “the ERA would do away with much of the special status granted to women, including the right to be supported by their husbands, and would damage the traditional American family.” 3

Stop ERA national Chairman Phyllis Schafly leads members opposed to the equal rights amendment in a song about the pro ERA forces plan for a national demonstration in the capitol city. The song stated, “You better look out, I’m telling you why, they’re planning their trip, your votes to buy, Bella’s bunch is coming to town.” (Photo by Bettmann Archive/Getty Images)

Answers and beliefs are heavily influenced by not one, but multiple social categories as well as individual natures. One can hypothesize what social group will answer in a certain way, but people are not simple, and even similar groups can believe in opposite views. Overall, surveys, despite their faults, is one of the best ways to grasp an understanding of many perspectives on a specific topic that takes all the difference between people into consideration.

 

 

 

 

 

Footnotes and Work Cited

1  “Questionnaire Design.” Pew Research Center Methods. Pew Research Center. Accessed January 31, 2020. https://www.pewresearch.org/methods/u-s-survey-research/questionnaire-design/.

Aisch, Gregor, and Alicia Parlapiano. “’What Do You Think Is the Most Important Problem Facing This Country Today?’.” The New York Times. The New York Times, February 28, 2017. https://www.nytimes.com/interactive/2017/02/27/us/politics/most-important-problem-gallup-polling-question.html?_r=3.

3 Law, Tara. “The History of the Equal Rights Amendment.” Time. Time, January 15, 2020. https://time.com/5657997/equal-rights-amendment-history/.

 

 

In our previous class discussions, we examined how sociology can be compared to the “hard sciences.” In collecting data through processes such as surveys, sociologists, like other scientists, analyze numbers and trends to form hypotheses and eventually reach conclusions about the research topic. Unlike other sciences, sociology is composed of subjective material relating to individuals’ values and belief systems whereas the hard sciences are more concrete. Using surveys allows researchers to study patterns that reveal themselves over time by accumulating original data from groups that are too large to examine. Surveys are more personalized than other traditional research methods since the researches who conduct them are using them as tools to connect directly to their subjects to evaluate their viewpoints.

For conducting our research, conducting a survey is a great approach because if each member of the class intrinsically gathers results from a diverse group of people on Ramapo College’s campus, the results can be generalized for the overall Ramapo population. This can only occur if we carefully follow the proper guidelines and avoid any room for misinterpretation and confusion from the participants. To do so, double-barreled questions and words with strong connotations should be avoided as well as other forms of push polling. As noted by the Pew Research Center, the first step of conducting a survey is to decide what matters will be encompassed in the survey. The article mentions techniques such as open- and closed-ended questions and the ordering of questions that could have a significant impact on the way the participants answer the survey and whether or not they are likely to continue answering. Additionally, the article claims that asking demographic questions is always helpful for the researchers for when they make connections later when assimilating why some participants answered one way and others answered differently.[1]

I believe that conducting the survey will be a better learning experience than using more traditional research methods because of how customized it will be. We will be creating it ourselves by coming up with our own questions, using Google Forms as our platform, and asking a group of people that we share ties to. Although the participants will most likely remain anonymous, it is more eye-opening to study results from people who we personally reach out to, whether that may be through social media or in person, than to read articles that are already written, analyzed, and published. It will certainly be an interesting experience as well because no, people will not answer the same way as each of us do. I do not expect them to share the same opinions as me; even if they believe in the same overall picture as I do, I am sure that there are smaller and more technical subtopics that may cause us to differ in opinion. I do think that gender, race, and social class, as well as other factors such as religion and familial upbringing, impact the ways we see the world since these aspects form our identities and are what unite us as a human race as well as are what divide us, unfortunately. I expect to see these differences reflected in survey responses because just in casual conversation and in the manners people express themselves through their fashion styles and in social interactions, these traits are evidently revealed.

 

Bibliography:

[1] “Questionnaire Design.” Pew Research Center Methods. Pew Research Center. Accessed February 4, 2020. https://www.pewresearch.org/methods/u-s-survey-research/questionnaire-design/.

iStockPhoto, “Customer Survey”, business.lovetoknow.com, https://cf.ltkcdn.net/business/images/orig/173539-849×565-customer-survey.jpg
We will be using Google Forms for the platform of our survey.
SnapEngage, help.snapengage.com, https://help.snapengage.com/files/2014/02/survey-1-768×623.png

 

There is no worse version of a single story than the single story we hear when it comes to Autism Awareness. Quite honestly, almost anything in the mainstream media and the majority of public knowledge is based on a single story of autism. An intensely damaging one, that can put children in harm’s way.

Most Americans have likely heard of the anti-vaccination movement that has become a new craze, based off of a false study from a now discredited physician named Andrew Wakefield. This study claimed that vaccinations directly caused autism, prompting parents to avoid life-saving vaccines that would protect their child, simply because of this intense fear of their child being on the Autism Spectrum.

It is here that I feel what Nigerian author Chimamanda Ngozi Adichie stated during her TED Talk about the dangers of a single story rings especially true. She said “What this demonstrates, I think, is how impressionable and vulnerable we are in the face of a story.” Now, how does this even apply?

Consider what we think about when we think of autism. Perhaps the organization Autism Speaks comes to mind? Autism Speaks practically dominates the conversation on autism and autism awareness, but what many outside of the autistic community don’t realize, is how harmful the single story that Autism Speaks gives to the public is.

Autism Speaks originally used most of it’s budget to find a supposed “cure” for autism, which they soon found to be impossible, so now they focus on research meant to find genetic markers that can be used to test for autism in fetuses so that fetuses with autism can be selectively aborted. They focus their resources around non-autistic people who happen to have autistic people in their lives in some capacity. Autism Speaks is meant only for the non-autistic, based on the resources they provide and they way they present these resources. This organization is responsible for some horrific ad campaigns that have contributed to many of the myths and stereotypes that autistic people suffer from today, including the infamous “I Am Autism” video and the “Autism Every Day.” You can watch both videos below.

https://www.youtube.com/watch?v=9UgLnWJFGHQ
Harmful advertisement which portrays autism as some sort of horrific monster, and those on the spectrum as passive victims robbed of their humanity.
https://www.youtube.com/watch?v=O0vCz2KWMM0
Part of this short film includes a mother who describes how she wanted to commit a murder-suicide because her autistic child is such a burden, you can imagine how horrifically offensive this is.

Autism Speaks also does not include autistic people on their decision-making board outside of a couple of token diversity positions that hold no power. They also support harmful therapies that attempt to “correct” a child’s autism by forcing them to behave more “normally.” A common slogan among the autistic community is “Autism Speaks does not speak for me!”

Considering how this organization has dominated the narrative of Autism Awareness and the common perception of autism, it is no wonder we have movement like the anti-vaccination movement. With the color blue and the puzzle piece symbol being associated with autism due to the influence of Autism Speaks, it really shows how strong this single story of theirs is. Autistic voices are drowned out in favor of the non-autistic majority’s perspective on autism. The only way we can combat this is by exposing the public to the many, many stories of those who are actually autistic, so that our society will no longer be confined by this single story.

After all, this single story is putting real children in danger. Children who are forced to suppress autistic behaviors and masquerade as “normal” children suffer very real trauma that follows them well into adulthood. Stereotypes and myths are often what prevent autistic people from living their lives to the fullest, not their autism itself. Children die from preventable diseases when their parents choose not to vaccinate, because they are so afraid of what they believe autism to be.

I am an autistic woman, and I am sick and tired of this single story defining not only me, but many others like me. That single story is not the story of any autistic person. We need to change the narrative and let the many voices of the real stories be heard.

Works Cited

Hansen, Quincy. “Speaking of Autism…” Speaking of Autism…(blog). WordPress, April 2, 2019. https://speakingofautismcom.wordpress.com.

TEDTalks: Chimamanda Adichie–The Danger of a Single StoryYouTube. TED, 2009. https://www.youtube.com/watch?time_continue=112&v=D9Ihs241zeg&feature=emb_logo.

Image result for paterson nj
Being an African American male in Paterson is a blessing and a curse. A blessing because Paterson has a rich history of being a contributor to the United States. Being one of the most densely populated cities in New Jersey and being known as the “Silk City” due to its large contribution of silk during the 19th Century. Paterson is a home to many cultures and races and is continuing to grow. However, the curse of living in Paterson is the image the world has of Paterson. Paterson is constantly stereotyped as being a bad place to live as people feel “nothing good comes from Paterson”. Education is mediocre, streets are dirty, and the crime rate is high. Overall Paterson is one of the lowest places to live in New Jersey. When people learn that I am from Paterson, they stereotype me as being uneducated and low class. When people lay eyes on me, they think I am intimidating and uninterested. They think this because when you look at my face, my facial expression shows a person who doesn’t care about what is going on. I don’t smile or converse and I stay to myself. That there bring the labels disrespectful and ignorant to my image and once that gets placed on you, there is no escaping that. But none of that is true about me.
As a person, I am really just introverted on initial meetings. When I am around new people, I am quiet and reserved as I try to get a feel of my surroundings and the people in it. But the biggest thing that people always get wrong about me is that I am ignorant and disrespectful. Adults who know me as a person, know that I am anything but disrespectful.  Everything I have accomplished in life people assume that I don’t try because of my laid back personality. But I work for everything I earned. I was my high school graduating class valedictorian, that there should speak about my work ethic. Nigerian author Chimamanda Ngozi Adichie states in her TED talk, “the problem with stereotypes is not that they are untrue but that they are incomplete.” This is so true because people in Jersey associate Paterson with crime and ignorance. Yes, Paterson has this but Paterson holds many opportunities for us to take advantage of. But because we’re so used to being stereotyped for  not receiving high quality education or proper care and concern about our safety from adult figures, we look down on ourselves and just give up before we can even begin. To paraphrase what Adichie states, “but to insist on only these negative stories is to flatten my experience and to overlook the many stories that form me,” and that’s what people in Paterson do. Which is sad to say because I know a lot of people with the potential to do great things. But that’s the community I live in and I acknowledge that. So in return I take it upon myself to achieve their dreams for them. To show people in the world that the Paterson community can produce someone worthy enough to be seen as something more. But most importantly, I feel it’s my job to show people in Paterson that with the right opportunities and proper motivation,we can be something in life. Anyone living in the harsh conditions of Paterson has a chance in this world. Being born and raised as a African American male, that is what I feel is my place in the Paterson community.

Image result for streets of paterson nj

Image result for streets of paterson nj

Works Cited

“City of Paterson, New Jersey.” Paterson Vista Park / City of Paterson, New Jersey. Accessed 

January 29, 2020. https://www.patersonnj.gov/department/division.php?structureid=125

“Fatal Shooting on East 25th Street in Paterson NJ.” NJ. North Jersey Media Group, January 1, 

1AD. 

https://northjersey.com/picture-gallery/news/passaic/paterson/2019/05/16/fatal-shooting-east-25th-street-paterson-nj/3690664002/.

YouTube. YouTube. Accessed January 29, 2020. 

https://www.youtube.com/watch?v=ZCULzTDSXcI.
Photo by Natasha Spencer on Unsplash.

In July of 2015, I had a panic attack that changed my whole life. It altered everything I thought I knew about myself, and for a while, I felt lost and completely alone. When I was later diagnosed with generalized anxiety disorder, I did not think that it made me much different, if any different, from anyone else. Yet my “friends” and even teachers seemed to think so.

The phrase “mental illness” or “mental disorder” comes with such a negative connotation to it, yet millions of people in the United States have faced it. According to Mental Health First Aid USA, “…almost half of the adults (46.4 percent) will experience a mental illness during their lifetime.”^1 However, because of the stigma around the topic and lack of affordability of care, “only 41 percent of the people who had a mental health disorder in the past year received professional health care or other services.”^2

The stigma associated with mental health is related to what Nigerian author Chimamanda Ngozi Adichie describes as a “single story.” In her TED Talk, “The Danger of a Single Story,” Adichie describes how growing up she would read books, yet she would have a hard time connecting with the characters because none of them looked like her. This illustrated the single-story narrative, that would only portray or present one type of character to the audience. Overall, Adichie depicts how only discussing one individual’s experience or one individual’s truth can be perilous, because by doing so, one is creating a stereotype.


As Adichie faced stereotypes because of her race, I faced stereotypes because of my disorder. I was assumed to be an “attention-seeker” or someone that was “weird.” When applying to my first job at an ice cream shop at fifteen, I disclosed my disorder because I was homeschooled at the time and I thought that explaining that to my potential employer would be beneficial, because I was raised that “honesty is the best policy,” right? However, as soon as the word “anxiety” came out, I never heard from them again. And that hurt. That was when I realized, that if I were to embrace my disorder, I would have to deal with people’s negative assumptions. Assumptions that had no evidential support whatever.

Fast forward to about five years later, I was able to become Mental Health First Aid certified in March 2019 at Ramapo College. I have also been able to help be there for others through their mental health struggles which are a pretty empowering feeling in and of itself. But don’t get me wrong. I have had help along the way. I will never forget one of the most prominent people that helped me in the earlier period of my recovery. A family friend who gave me my first job at the web development he worked at. Unlike the first job I applied for, he gave me the opportunity BECAUSE I shared my story. He was one of the first people that were able to relate to me because of his own mental health struggles. He struggled with severe anxiety at night and at the time so did I so he would check in to see if I was okay and at least eventually fall asleep. He had three children of his own so the checking-in part was fairly natural to him.

Taken in early 2017, my family friend and I.

Unfortunately, over the years his mental health illness considered spiraling and he pushed everyone out of his life, even his family. In early June of 2019, I discovered through a GoFundMe post for his family, that my dear family friend, had succumbed to his illness and took his own life. I was in utter shock for days, and all those feelings of confusion and fright that I experienced with my first panic attack flowed back. However, I knew I had to be strong. If not for just myself, but my friends and family. The stigma of suicide is saddening in and of itself, as it is seen by many as selfish or weak, but they are only seeing a single side of it and not the deep pain that the individual is facing.

Thus, I have made it my life goal to work towards diminishing the single-story reaction that has fueled the stigma of mental health. Because lending an ear does not take a million dollars, it takes understanding and a few minutes.

Photo by Dustin Belt on Unsplash.

Footnotes:
1 “5 Surprising Mental Health Statistics,” Mental Health First Aid, February 6, 2019, https://www.mentalhealthfirstaid.org/2019/02/5-surprising-mental-health-statistics/)
2 Ibid.

Resources:
“5 Surprising Mental Health Statistics.” Mental Health First Aid, February 6, 2019. https://www.mentalhealthfirstaid.org/2019/02/5-surprising-mental-health-statistics/.

“The Danger of A Single-Story.” Filmed in 2009. TEDGlobal video, 19:16. https://www.ted.com/talks/chimamanda_ngozi_adichie_the_danger_of_a_single_story/up-next?language=en

Chimamanda Ngozi Adichie tells her single story through her TED talk and how she was not as everyone had thought; Adichie was an African attending University in America and her roommate, for example, expected her to have tribal music and not know how to use a stove because media portrays Africans so poorly. As she continues to present, Adichie explains that everyone can have their own single story and there are many that are not about catastrophes and still just s important. Adichie’s story was one of people believing she was less than she actually was; my single story makes me more generic than I am. People look at me and see a white, blonde, female with blue eyes. I am middle class and my parents have been together for twenty-seven years and people know that. I was a varsity athlete for four years and everyone assumed I was popular and not the smartest. While yes, I do fit a definition of white girl as I dress a certain way, wear scrunchies, and carry my hydroflask around, I am more than people think.

This image shows the generic “white girl starter pack” in which society assumes all white girls own these items but reality can fall far from this.

I have been in honors classes my whole life, including college currently, and care a lot about my education. I also wasn’t that popular and actually had no real friends for a while. I had attending therapy in high school and felt very alone.  People also can’t see in their single story of me that I am a type 1 diabetic. Being a diabetic has changed my life and alters certain situations for me that a lot of people will never know about. For this assignment, I asked my friends what they first thought of me and I do fit their single story of me in many ways but there are many other details that impact who I am. I am by no means less than what people see me but I am less generic- to them I am a basic white girl, while in reality, I am deeper.

While people may not see the real me, but rather the single story of me that they have created, I cannot blame them as I too see people as their single story. Moving into my dorm, the first semester of freshman year here at Ramapo College, I had a single story of my roommate already laid out in my head. My roommate and I had met once prior to moving in and all I got from her was that she was too nice; she said no to nothing, she was open to everything, and she was spoiled her whole life. I was aware that she lived in a gated community in Kinnelon, New Jersey, a rather rich area. She told me about her huge house and how she had traveled the world when we first met and for some reason that bothered me. In my mind, I had a single story of her: a rich, spoiled girl who was used to getting whatever she had wanted. While moving in, her mother took complete control and I had no say in where I wanted my bed or dressers because it was her way or no way. They began hanging paintings all over our dorm, quite expensive ones actually, while I attempted to put up my printed photos of my friends. I saw my roommate as materialistic. As we began living together, I will admit that for a long time I only saw her as this single story that I had formed but in reality she was much more. My roommate is a very smart person; she came into college with over forty college credits from AP classes in high school. She is also super friendly and not materialistic at all but rather she can be very down to earth. We all question why everyone sees us in one light but we too are to blame as we see others in one way as well. The world will always have judgement but we as individuals need to dig a little deeper to discover the truth. Single stories are single for a reason; they maintain one plot with no depth or truth.

Adichie, Chimamanda Ngozi, “The Danger of a Single Story,” October 7, 2009. TED video, 

https://www.youtube.com/watch?time_continue=630&v=D9Ihs241zeg&feature=emb_logo.

 

This is a picture of my best friend and me. We have been friends since we were both four years old.

Nigerian author Chimamanda Ngozi Adichie tells the narrative of the dangers evoked by telling one version of a multiversion story.  She acknowledges that people often have notions of stereotypes which unintentionally pass judgement, and she enlightens her audience that one story is not definitive for all.  Introspectively, Adichie elicits the realization that not a day passes by where I do not think of the blessings I have been granted along with the life I have been given. Considering the hardships many generations of families face in the United States alone, my parents endured sacrifices to prevent my sister and I from having to, although that is not the end result for many.  Despite common associations and misconceptions, single stories are more than economic status, education level, and physical appearance. One of my best friends appears to be just like me: we are both nineteen-year-old college students who love to relax and spend time with friends and our large Italian families. Her single story, however, sets her apart from the large majority of individuals our age.  The beginning of her single story began when she was fifteen years old. One day in 2015, I went to the mall with my best friend, and that night she went to sleep without knowing her life would be forever altered the following day. An emergency surgery revealed a tumor to be in one of her intestines. The severity of her condition was unknown, but she was diagnosed with Peutz-Jeghers Syndrome (PJS), a rare genetic disease that drastically increases her risk of getting cancer while causing her to get tumors throughout her body. Her family worked diligently to find the best doctors and treatments, only to discover that her disease is incurable.  Not many people are affected by this disease and even less are aware of its existence. At that point, despite the unclear future she faced, her family and friends believed the hardest days to be behind them. The sickness from within did not match the person from outside: she does not match the stereotypical descriptions of being sickly, frail, and weak. She defies the odds and is a strong, courageous young woman who does not allow for her setbacks to be her downfalls.

This image is from my friend’s sixteenth birthday; it was just a year after her diagnosis of PJS.

Although her progress has been consistent, events took a turn for the worse in December 2019.  She told me that she had been diagnosed with breast cancer, and I was left heartbroken once again. This “single story” affects me on a personal level because no one ever expects for a loved one to experience it.  By looking at her, she seems to be completely normal and healthy; one would never guess that my friend standing at five feet tall is one of the strongest people I have ever known.  The relationships she has with people are genuine, and she touches the hearts of everyone she comes across. She witholds the information of her sickness and disease, never divulging to a soul of the battles she is attempting to overcome.  Her rare disease and now cancer battle have allowed her to build strong relationships between herself and her supporters. She has built a strong foundation by herself.  It takes a strong individual to overcome what she is experiencing, but it takes an even stronger soul to not allow her weaknesses to define her character.  Adichie points out that, “the consequence of the single story is this: it robs people of dignity. It makes our recognition of our equal humanity difficult. It emphasizes how we are different rather than how we are similar.”1   The single story of an ill person is written so that they look weak, they have no hair, and they are disabled physically, mentally, and emotionally.  The single story portrays their differences and identifies them in society to be dependent on others. Considering this, Adichie also states, “So that is how to create a single story. Show a people as one thing, as only one thing, over and over again, and that is what they become.”2   When surveying the power relationships between herself and those surrounding her, one can only blame society for spreading this misconception.  By depicting sick individuals to be visually different, people begin to perceive them as different beings who do not possess similar qualities. Going against this, the relationships my friend has built between herself and her friends, however, disprove the single story of sickness: she is strong, physically and mentally able, and so unbelievably genuine, courageous, and independent.

This photo was taken at my best friend’s high school graduation. Despite not going to the same high school and now college, we remain close.

There is power in numbers, and with that comes strength. In honor of my friend, her family founded a foundation for people with rare genetic diseases a number of years ago.  Through this foundation, they have come in contact with people from all over the world, some even having the same rare disease as my best friend. Her family has helped so many other families deal with their hardships.  I first realized their impact just a few years ago; every year, they host a benefit dinner to raise awareness for those with life-threatening diseases. It is an occasion to give back to those in need, but it is an emotionally heavy event.  While her family speaks, time halts for everyone in the room. My best friend’s family has granted a voice to those who feel alone and hopeless that their quality of life has drastically declined. The more that this foundation expands and the more that their message flourishes, the more people and victims are reaching out to share their stories.  Her family has connected people from all over the globe. People are navigating their voices to be heard and to be related to, and it is a beautiful community to be a part of. The power relationships formed as a result of my best friend are solid and irreplaceable as no one could possibly fathom or relate to what they are enduring. I learned from my best friend that disease does not have a face, and it does not know a single story. As stated in Adichie’s talk, “The single story creates stereotypes, and the problem with stereotypes is not that they are untrue, but that they are incomplete. They make one story become the only story.”3   Looking at my friend, no one would know that her body is fighting her.  Our bond and friendship have only grown in the last several years, and it is still due to what we share in common, but it is now the result of being there for someone who still puts everyone above herself. The powerful friendship dynamic we share is a direct result of the amazingly strong individual she has become, and I admire her for it. I admire her for keeping her head held high in the midst of what is undoubtedly the darkest time of her and her family’s lives. I observed the power of multiple narratives, and I have witnessed how they brought unity among people who may have lost hope and faith along the way. Just like Chimamanda Adichie faced assumptions about her culture and origins, people could assume that my friend is handicapped because of her condition. Judging an entire population based on a small fragment of knowledge denies people of their own narratives.  Culture and sickness do not have definitive looks. There is diversity in every person, and power thrives within that diversity. “Power is the ability not just to tell the story of another person, but to make it the definitive story of that person.”4 One narrative portrays one voice, but when multiple people express their stories, the power that is evoked is one-of-a-kind, and I have faith that one day, these voices will be able to transform society to look at people with broader minds and bigger hearts.

This image is of my best friend at her foundation’s event last year. The image portrays her positivity and free-spirited soul.

__________________________

1 Chimamanda Ngozi Adichie, “The Danger of a Single Story,” October 7, 2009. TED video, 13:54, https://www.youtube.com/watch?time_continue=630&v=D9Ihs241zeg&feature=emb_logo.

2 Ibid, 9:26.

3 Ibid, 13:11.

 4 Ibid, 10:01.

Bibliography

Adichie, Chimamanda Ngozi, “The Danger of a Single Story,” October 7, 2009. TED video,

https://www.youtube.com/watch?time_continue=630&v=D9Ihs241zeg&feature=emb_logo.

BLOG POST 1

Adichie discusses many topics including stereotypes, power, ignorance, and biases. She believes having one story about a people causes an assumption about all those who fall under the group, even if it may not be true for everyone. The quote in the image is one of the more prevalent statements she made during her talk.

“Office equipment of a Communist newspaper is burned in a Tehran street, Aug. 19, 1953, during the pro-Shah riot which swept through the capital. After a day of street fighting, Royalist forces triumphed and Dr. Mossadegh the Prime Minister was ousted. Major General Fazlollam Zahedi, the Shah’s nominee as Prime Minister, who led an unsuccessful coup a few days ago, is now in control. (AP Photo)”
https://www.cnn.com/2013/08/19/politics/cia-iran-1953-coup/index.html

Many Americans have a single story about America. There is a failure to acknowledge the country’s past and present mistakes. Errors are excused by claiming America is still the best place for freedom, allowing citizens to become content with current situations. By education and media covering up or ignoring events in the past where America has done morally questionable actions allows the continuation of the single-story Americans are taught about the inherent goodness of their country.

“This Vogue magazine cover has stirred up a lot of controversies. It features basketball player LeBron James and supermodel Gisele posed similarly to King Kong, pictured as a Brute. Some critics are saying that even as LeBron is the first African American male to grace the cover of Vogue, why does it have to be a picture that perpetuates racial stereotypes?”
http://www.gsws.pitt.edu/blogs/ola8/performing-black-masculinity

This is an example of how single-stories are supported by media images whether covert or overt, whether intentional or unintentional. By continuing this single-story idea about colored men being rapists or brutes presenting a danger to white women can heavily influence implicit biases. With images in our everyday life proving single-stories, it makes it extremely difficult to challenge what the stories tell us.

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